Here’s something that we did not see coming a year and a half later . . . Paige is getting better. And, it’s not just me thinking that, I’m usually the last person who ever thinks she is getting better. Verifiable measurements and endurance tests have concluded that Paige has improved with Lokomat training. Today was our last Lokomat session, and the person who is taking our spot in the study (there can only be around 12 people training during any given time period) is driving 4 hours each way for their session. I would actually have to confess that it might be worth it.
The next great idea in her recovery will be E-stim, where they will attach “stickers” to her hand and I will stimulate them while they are doing something (like writing or playdough). This is in hopes to stimulate unresponsive nerve endings. Steve loves this idea because it was Dr. Jallo’s from Hopkins. More to come on . . .
We are also switching our PT down to the main hospital at Childrens because apparently that’s where they keep the smart ones (just kidding, sort of). I like her new PT, so we are excited to start back with traditional therapy to see if we can keep her new baseline in place. We also had a great visit from her rehab doctor who thinks she is doing super and will continue to improve under the new PT plan. And, thank God in heaven, the resident who doesn’t understand math has finally transferred. We’ll really miss her and her crazy incompetent antics.
So, all is well in the land of Paige. And, I soon might have a little down time since we don’t have to drive downtown three times per week. Sure, I’ll miss the furniture on the porches and the police cars, but we’ll always have the zoo to go to.
